Another contribution from me to Ronovan Writes’ weekly haiku challenge. This week’s words were “mad” and “sane”. The haiku’s form provides structure. Our minds provide the creativity! The link is here: https://ronovanwrites.com/2020/12/14/ronovan-writes-weekly-haiku-poetry-prompt-challenge-336-mad-and-sane/. As a person with fibromyalgia and chronic conditions, I am always heartened to see the work of others like him who push through…
Category: Disability
Late Night Haiku
Many people living with chronic illness, worry, and pain, experience insomnia. In fact, even children can experience it. It is a very insidious problem, and with the current state of affairs, I suspect that more people are staying awake than before. Paradoxically, even those with chronic fatigue or fibromyalgia, may be unable to sleep, although…
Post-Equinoctial Saudade
No much up to writing lately, and they say a picture is worth a thousand words. 5 Septembers ago, the equinox gave me the gift of a new face. I was afflicted with a virus called Bell’s Palsy. It changed my life. We are all judged on first appearances. I used to be excruciatingly self-conscious…
Fibromyalgia Awareness during COVID19
I am sharing this piece in honour of May, Fibromyalgia month. May 12th is Fibromyalgia Awareness Day. This is a victory for those of us who have been diagnosed with this illness, which has gone through many medical iterations before finally and most recently being considered an illness of the central nervous system. Which makes…
The Soloist
I’ve been having a hard time with this solo-self-isolation. All members of my family are thousands of miles away, experiencing their own lockdowns. Music, books, cleaning, and cooking are losing their charms after the 2 weeks I’ve been doing this! And I fear there will be weeks more. As a person with disabilities that make…
Patiently Brown 2: A Journal of the Plague Year
For those of us with disabilities and compromised immunity, the coronavirus contagion is loaded with particular fear. Like the elderly, our bodies are already dealing with underlying issues, some of which are already being treated for, and some for which there is no reliable big pharma treatment but sometimes symptomatic help. Over the last six…
World Social Justice Day
The United Nations has declared February 20th as World Social Justice day. In this era, social justice is like a carrot dangling before humanity while the vast majority of us are being beaten with sticks. So, social justice is an aspirational desire, a desire to remediate the wrongs of past times and current ways of…
Patiently Brown: Misadventures in the medical system # 1
I am always being told what to do. Like many people with poorly understood disabilities and conditions, I have heard every possible advice that people’s grandmothers, parents, aunts, doctors, naturopaths, second cousins, and their neighbours might possibly have to offer. Headache. Oh, just do this, and it will go away. My aunt/doctor/grandmother used to have…
Ringing the Bell on Facial Palsy
An essay on the long-term effects of permanent facial palsy.
Ear to the Ground 